Our only child, Gwendolyn, just turned 5 years old. She never crawled, nor walked, nor taken a single step, and she has never spoken a single
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It has been a long and unexpected road to get to this point. While Gwendolyn seemed perfectly healthy at birth, by 6 months old, our babbling baby future looked extremely grim. "Take your baby home and love her; your time is very limited," said the doctor who diagnosed Gwendolyn with the degenerative and
Men Nike Free Run 2 Red Gold Black White terminal neuromuscular disease spinal muscular atrophy (SMA). We were told she had months, perhaps a year. That was five years ago.

Referred to
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Men Nike Free 3.0 Soar Blue Pure Platinum Reflective Silver from Gwendolyn, and at this point, she’s completely paralyzed save for very slight movement in her fingers and wrists. She requires machines to help her breathe, eat, cough, and swallow and needs around the clock monitoring. Despite the
Men Nike Free Run 3 Anthracite Gray Reflect Silver New Green physical toll, SMA does not impact Gwendolyn’s cognitive ability; it never will.
Nike Roshe Run Woven Men Red Black Quilted And while Gwendolyn bravely faces a mountain of challenges every minute of every day, in
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Over time, my husband and I have learned how to manage her medical care and navigate risks to give her the life that she demands. She’s an over the moon proud kindergartener
Wmns Nike Free 5.0 Wolf Grey Pink Force White Quilted attending Washington
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Shortly after Gwendolyn’s diagnosis, we started a nonprofit in
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Men Nike Free Run 2 Blue White Grey and soon nonathletes and complete strangers were joining in, too. They’ve run marathons, half marathons, 10Ks, and 5Ks. They’ve competed in triathlons and completed extreme endurance events like
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Last year, my husband, Bill, ran
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We
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Nike Roshe Run Hazel Color Oxford Brown into a store and buy a jogging stroller. Gwendolyn needs are so specialized there are only a few companies in the world that make a wheelchair to support her positioning and life critical machines, and none
Men Nike Free Run 5.0+ Turquoise White Black of them are built for long
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Women Nike Free Run 2 Grey White Blue Gwendolyn. Next up was to speak with the SBIM organizers to approve a 5 year old in a wheelchair as an official competitor. Their answer, "There are exceptions to rules, and this is certainly one of them." Gwendolyn was green lighted! We were
Men Nike Free Run 2 Grey White Blue actually doing this! Her dream was to come true! Now that meant
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I had never run more
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Men Nike Free Run 3.0 V4 Dark Grey Reflect Silver Black done any running in years, nor was it an ambition. And Bill would need to train to push Gwendolyn and her medical equipment (all 85 plus pounds) for 13.1 miles, including hills. We have spent months training it is rarely easy. But then we see
Women Nike Free Run 2 Pink White Orange Red Quilted Gwendolyn’s feverish happy fingers tap tap tapping away
Women Nike Free Run 2 Anthracite Grey White Black Yellow at just the sight of her running wheelchair and a fresh perspective surrounds us. When I think of how hard running can seem to me, I remember what a gift running is. When I start to tire, I remember how lucky I am to have the ability to put one foot in front of the other. I remember
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Every person we know is now
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Men Nike Free Run 3 Sequoia Electric Green they are either one of the 100 plus Team GSF members running with us or
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On race day on Saturday,
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Every runner has
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